A Sister's Devotion: Sarah Ingledue's Journey of Care, Love, and Advocacy
In this conversation, Sarah Ingledue shares her profound journey as a nurse and caregiver for her sister, Rachel, who has Cornelia de Lange syndrome. Sarah discusses her early passion for nursing, her unique relationship with Rachel, and the challenges and joys of caring for someone with special needs. The conversation delves into the importance of love and support in their lives, the daily responsibilities Sarah manages, and her aspirations to create a respite care service for families in similar situations. Throughout, Sarah emphasizes the significance of happiness, quality of life, and the need for better support systems for families with special needs individuals.
takeaways
- Sarah's nursing background has equipped her to care for Rachel effectively.
- The bond between Sarah and Rachel is deep and rooted in love.
- Caring for a special needs sibling can be both challenging and rewarding.
- Respite care is crucial for families with special needs individuals.
- Sarah's husband is supportive and is pursuing nursing to help care for Rachel.
- Daily life with Rachel involves extensive care and attention.
- Sarah's daughters are learning valuable lessons about kindness and acceptance through their relationship with Rachel.
- Healthcare funding and support for special needs individuals is a significant challenge.
- Sarah is passionate about creating a respite care service for families in need.
- The importance of advocating for proper care and understanding in healthcare settings.
titles
- A Sister's Love: Caring for Rachel
- Navigating Life with Cornelia de Lange Syndrome
Sound Bites
- "Love is medicine."
- "Rachel grows on you."
- "It's just fair."
Chapters
Childhood Experiences with Rachel
Understanding Cornelia de Lange Syndrome
The Importance of Love and Support
Finding a Partner Who Understands
Family Dynamics and Support
Daily Life and Responsibilities with Rachel
Raising Daughters with a Special Needs Sister
Communication and Education for Rachel
Navigating Healthcare and Funding Challenges
Advocacy in Healthcare: A Caregiver's Role
The Birth of Raise RespaCare: A Vision for Change
Building a Community: The Need for Respite Care
Connecting with Support: Legislative and Community Efforts
Healing Through Care: The Role of Veterans
Quality of Life: Ensuring Happiness for Ray
Creating Memorable Experiences: Travel and Adventures
Raising Awareness: Fundraising and Community Engagement
https://www.raysrespitecare.org/
https://www.instagram.com/rays.respite.care/