Fatherhood and Fragile X: David Tillman on Raising Miles and Embracing the Journey

Show Notes

In this conversation, Mark interviews David Tillman, a dedicated father of a son with Fragile X syndrome. David shares his journey as a parent, the challenges and joys of raising Miles, and the importance of community support. They discuss the impact of Fragile X syndrome on Miles' life, the significance of music and arts in education, and the need for advocacy in the disability community. David emphasizes the value of patience, understanding, and connection in navigating the complexities of raising a child with special needs.

takeaways

David Tillman emphasizes the importance of dad representation in discussions about parenting children with special needs.
Fragile X syndrome presents unique challenges, but also opportunities for connection and joy.
Community support is crucial for families navigating disabilities.
Music and arts can play a significant role in the development of children with special needs.
Patience and understanding are key in helping children with disabilities thrive in social situations.
The Fragile X community provides invaluable resources and connections for families.
Social media can help families connect with others facing similar challenges.
Advocacy is essential for ensuring that the needs of children with disabilities are met.
Preparing for the future involves teaching independence and life skills from an early age.
Every family’s journey is unique, and it’s important to celebrate the small victories.

Sound Bites