Episode 121

full
Published on:

8th Apr 2025

"For Brady and Beyond: Gaile Valcho’s Journey of Hope, Guardianship, and Community"

summary

In this conversation, Gaile Valcho discusses the evolution of the Holly Springs Autism Acceptance Day, highlighting the importance of community engagement, police involvement, and the establishment of a nonprofit organization to support families with autistic children. She shares insights on training first responders, the significance of family dynamics, and the challenges of parenting a teenager with autism. The conversation emphasizes the need for awareness, support systems, and self-care strategies for parents. In this conversation, Gaile Valcho discusses the importance of guardianship for her son Brady, who has autism, and the steps they are taking to ensure his independence and well-being as he approaches adulthood. She emphasizes the need for families to understand the legal and medical implications of guardianship. Gaile also shares her role at the Hand Center for Autism, where she supports families and builds community partnerships to provide resources for children with autism. The conversation touches on the challenges of living with chronic illness while parenting, the significance of the spoon theory in understanding energy levels, and the need for better education and awareness in schools regarding autism. Gaile highlights the importance of community engagement and acceptance for individuals with autism and their families.

takeaways

  • The Holly Springs Autism Acceptance Day has grown significantly over the years.
  • Police involvement is crucial for building community trust and understanding.
  • Training first responders on autism can prevent misunderstandings in crisis situations.
  • Establishing a nonprofit allows for more structured support and fundraising efforts.
  • Family dynamics play a vital role in managing the challenges of autism.
  • Self-care is essential for parents to maintain their well-being.
  • Involving children in decision-making fosters independence and confidence.
  • ABA therapy can be beneficial for older children with autism.
  • Community events can enhance awareness and support for families.
  • Creative solutions are necessary for finding time for self-care. Guardianship is crucial for individuals with disabilities as they transition to adulthood.
  • Families should actively pursue guardianship to ensure their loved ones' rights and needs are met.
  • Community resources and partnerships are essential for supporting families with autistic children.
  • Events like Autism Acceptance Day foster community engagement and awareness.
  • Living with chronic illness can complicate parenting responsibilities.
  • The spoon theory helps in understanding energy management for those with chronic conditions.
  • Education systems often lack the necessary awareness about autism, leading to punitive measures.
  • Invisible disabilities are often misunderstood by the public, leading to stigma.
  • Building relationships with community organizations can enhance support for families.
  • Open conversations about disabilities can lead to greater understanding and acceptance.

Sound Bites

  • "You look great and I'm joking the switch"
  • "They really embraced the idea"
  • "It's one thing to have police involvement"
  • "We became a nonprofit during COVID"
  • "We need some help"
  • "You need an outlet, a healthy one"
  • "We find it really beneficial again for us"
  • "That's the promised land."
  • "It's an amazingly fun day."
  • "I got diagnosed with lupus over COVID."
  • "I use the spoon theory."
  • "There's invisible handicaps, sir."
  • "We're in a very judgy world."

Chapters

00:00

Introduction to Autism Acceptance Day

03:01

Police Involvement and Community Engagement

05:59

Training First Responders for Autism Awareness

09:09

Establishing a Nonprofit and Fundraising Efforts

11:52

Family Dynamics and Support Systems

14:59

Parenting Strategies and Self-Care

18:02

Brady's Growth and Independence

20:54

Navigating Teenage Challenges and ABA Therapy

32:45

Navigating Guardianship and Independence

36:24

Supporting Families in Autism Services

41:52

Community Engagement and Resources

42:58

Promoting Autism Acceptance

49:08

Living with Chronic Illness and Parenting

54:07

Understanding Through the Spoon Theory

57:49

Challenges in Education and Awareness

01:00:25

Invisible Disabilities and Public Perception

https://bva.foundation/

https://www.handscenter.com/

Show artwork for Special Ed Rising; No Parent Left Behind

About the Podcast

Special Ed Rising; No Parent Left Behind
A Podcast for Parents, Caregivers and Professionals
This former Special Ed classroom teacher is on his own with a microphone, to share some of the magic he's learned in his 36+ years in the field.
Stories, strategies, and a true grasp for what life can be like for parents and caregivers of Disabled children are waiting here!
Witnessing, first hand, your challenges in the home has invigorated my desire to share what I know and to be a cheerleader for your lives and the lives of your child using mindfulness as a fulcrum to success.
You are not alone and your life matters. Join me as we let go and grow together!
Support This Show

About your host

Profile picture for Mark Ingrassia

Mark Ingrassia